Jadon has figured out how to get our attention. He holds his breathe. This action is pretty typical for a one year old but the problem is that because of the SMA he is not strong enough to bring himself out of it. We are then forced to do coughs and bipap in order to get his numbers back up. This is not very much fun at all.
He currently is not letting anyone other than Mommy or Daddy take care of him which doesn’t work very well when we are trying to train a new nurse. The alarm seems to be going off all day long today.