370 days ago our dreams for Jadon were much like every parent with a two month old. We wanted him to grow up and be someone special. Not necessarily in the eyes of the world but in the eyes of the people that matter to him. We wanted him to have experiences like every kid.
We saw him climbing every thing he could, like Kristin did. I envisioned him jumping his bike into the side of the house and skinning his knee and bruising his head, like I did. (I know, that explains a lot) We envisioned ourselves watching from our office window as he dragged his book bag home from the elementary school across the street. I expected that call from the principal when he snapped some poor girl’s bra strap. We saw him graduating high school and hopefully going on to college. We saw a young man that we would be proud of no matter how he turned out.
We are so very proud of him right now.
One year ago today the test results came back confirming that Jadon has SMA type 1. Our lives were turned upside down and our dreams were shattered. Our “normal” was gone and replaced by something that we are still trying to figure out. The one thing that I am certain of is that he has changed our lives forever. Forever he has changed us for the better.
Things around here are not always smiles and laughter, but the fact that he is able to smile and laugh after everything he has to go through, shows me that I have nothing to complain about. It is amazing the things that I have complained about in my life that just don’t matter. We are truly living every single day for the moment.
I truly don’t know how we would have made it without the support we have received from our family, friends and sometimes complete strangers. We have been continually overwhelmed at everyones generosity. I still don’t know how to truly say thank you loud enough or strong enough, but I only know to keep on saying it. Thank you, Thank you, Thank you.
Tony
Jadon's Hope Blog 