5 comments on “Madison Trip

  1. I can’t imagine how frightening it was to handle Jadon’s episode on the side of the interstate. So glad that you made it home safely and hope that things calm down for you all. We missed you by just a week – CeCe had her annual clinic in Madison on the 18th! We went to the zoo and of course I couldn’t help but think of when she and I had met you there when Jadon was just a baby. You are in our prayers!

    Fred, Becky, Alec and CeCe

    • Becky,
      I wish the timing would have been better and we could have seen you. I think of you guys every night when Jadon lays down to sleep. He sleeps every single night with the Winnie the Pooh rag(doll) you gave him under his left arm. He has slept with it ever since his surgery when we met you. I hope you all are doing well. I bet CeCe has really grown.
      Big Hugs from the BUG!

  2. Tony,
    Thanks for keeping us updated. I think about you and your family a lot. THE “BUG” is always in our prayers. Tell Bug to keep up the fight!

  3. Wow! Constantly, you amaze me as you walk in this realm of the unknown daily! So thankful that God is with you always wherever you are, wherever you go!

    Why don’t you tell us the dates you plan to leave for your next trip and let us build a prayer wall around you? We would love that!

    Love and prayers,
    Belinda

    • Belinda,

      We would love to have a prayer wall around us for our next trip. Jadon had another episode today so our 13 day streak without one has come to an end. We will be heading to Minnesota on Wednesday the 20th and returning home on Tuesday the 26th (the day after his 3rd birthday). So yes, please pray for a safe, uneventful, FUN trip. We are going to see lots of other SMA families and we are very excited, but also worried. We are putting it in God’s hands and trying not to worry because worrying does no good.

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