Six years ago we received a call that forever changed our world. A moment that will remain burned into our souls. Tony and I each held a phone as we stood beside one another, bracing for the news to come. I remember gripping the phone as the doctor began to say, “We have received Jadon’s test results. I’m so sorry, but he has tested positive for Spinal Muscular Atrophy.” She continued to speak, but to be honest the words began to jumble into a complete blur. All I wanted to do was scream, “NO! The test results are wrong!” and throw the phone across the room. The next memory I have is scooping up my precious baby boy, snuggling him while tears fell down my face.
The days, weeks and even months that followed were filled with lots and lots of tears, moments of anguish and grief and many sleepless nights. So many nights I held Jadon and just rocked him while listening to his lullabies, trying so hard to make sure my tears didn’t fall onto him. I often wondered, will tonight be the last time we get to rock like this peacefully listening to his lullabies. When you are faced head-on with loss, you quickly learn to soak up the smallest, most minute detail.
That was an extremely tough time for us. We struggled. Struggled to accept the reality placed before us. Struggled to let go of everything we “knew” and the dreams we had. Struggled to figure out the new journey ahead of us.
But in the midst of all this, the one thing we held steadfast to was HOPE.
Hope that we would weather this storm. Hope that Jadon would live past the predicted “nine months to a year” the doctors had told us. Hope that someday, other families would not be faced with this horrific disease.
It has not been easy. We have experienced many dark days and nights. Stared death straight in the face and thought for sure that was the end. But HOPE kept propelling us forward and by the grace of God, we are at this moment today.
Six years ago our lives changed forever. Changed how we look at the world. Changed our hearts as to what is truly important in this life. Changed how we go about our daily lives. And it was all because of a little baby boy that taught us how to dare to dream again. Dare to HOPE.
“Don’t lose HOPE, you never know what tomorrow brings.”