D-Day 2016

It’s D-DAY.  Diagnosis Day

On this day seven years ago we received the results from Jadon’s blood test which confirmed the doctor’s suspicion… he has Spinal Muscular Atrophy, (SMA) Type1.  August 25th will always hold significance in our lives as it was the day our lives COMPLETELY changed… forever.  This day will always cause us to take pause and consider our drastic shift in life-courses.  As we embarked upon our new “adventure” we vowed to always fight for Jadon as long he wants us to.  We were introduced to a quote that we quickly adopted as our M.O.  Often times this phrase is what forces us to overcome our fears and LIVE.  It gets us out the door when it would be easier to camp out in the security of our medically equipped home.

“Life isn’t about waiting for the storm to pass
It’s about learning how to dance in the rain.”

We have attempted to dance in the rain of this life storm on a daily basis. While we don’t know how long we have, we will continue to dance every chance we get.

DANCE IN THE RAIN
By Jadon’s Daddy

Jadon was born in June, June of 2009
When we headed for the house, everything was fine
We had our baby boy, our lives were filled with joy
Of his future we would dream, live was perfect… so it seemed

But life’s storm clouds would gather, and soon our lives would shatter
At just two months of age, a disease began to rage
The doctor came in that day, she said “Jadon has SMA”
“He’ll never walk, sit, or crawl.  He likely won’t speak at all.
It takes most all before they’re two and there’s not much you can do.”

I heard her say “No treatment and No Cure” and the rest was just a blur

Now I’ve heard the phrase “This too shall pass.”

……YYyeahhh, don’t tell me this too shall pass
‘Cause you’re talking about our son and we want this time to last…

So we’ll dance.

Dance, dance, dance. Dance in the rain.

We’ll dance in the rain of this life storm
We’ll live our lives outside the norm
We’ll trust in the Lord to hold us tight
As we fight for him with all our might
With a sparkle in his eye and a giggle on his breathe
We’ll think more of life and less of death
And we’ll dance.

Dance, dance, dance.  Dance in the rain.

Now our dance steps may seem small, you may not recognize them at all
Maybe a walk in the park or countin’ cars after dark
Maybe snuggles on a rainy day or making up ways to play
Maybe something big like going to school,
maybe something small like staying cool
But every moment big or small, we will celebrate them all
Because we know this storm brings tears and all our worst fears
But we don’t care what statistics say because Jadon’s with us today…
And WE WILL DANCE

Dance, dance, dance. Dance in the rain.

We’ll dance in the rain of this life storm
We’ll live our lives outside the norm
We’ll trust in the Lord to hold us tight
As we fight for him with all our might
With a sparkle in his eye and a giggle on his breathe
We’ll think more of life and less of death
And WE WILL DANCE.

Dance, dance, dance.  Dance in the rain.

Don’t tell me this too shall pass,
‘Cause you’re talking about our son and we want this time to last

So we’ll dance.  Dance, dance, dance. Dance in the rain.

“Life isn’t about waiting for the storm to pass,
It’s about learning how to dance in the rain.”