2018 Swing Giveaway 20+10=30

 

It was our intention to give away 20 of these amazing swings but with over 80 responses we felt inclined to add another 10.  SO WE ARE GIVING AWAY 30 SWINGS!  We sure wish we could give one to everyone.

Entries were taken from a link posted on Facebook and then recipients were chosen randomly using Random.org.

The 30 recipients are below.

As witnesses to the degenerative cruelty of Spinal Muscular Atrophy (SMA), we founded Jadon’s Hope Foundation (JHF) in honor of our son Jadon (aka “The BUG”.)  Jadon was diagnosed with SMA at two months of age and we will  celebrate his 9th birthday on June 25, 2018.  JHF’s mission is to promote SMA awareness, fund research efforts and support families just like you that are impacted by and fighting this cruel disease.  Shortly following his diagnosis, we were given the phrase “Life isn’t about waiting for the storms to pass, It’s about learning to dance in the rain.”  This has become our mantra.  Our battle cry.  And we hope others facing the raging storm that is SMA will also learn to “Dance in the Rain.”

Jadon’s Hope Foundation is 100% volunteer based, so all fundraising efforts go towards supporting our mission and funding the many programs we are honored to be a part of.  Since Jadon’s diagnosis, we are proud of the opportunities we have been involved in to support the SMA community:

• Over $50,000 donated to help fund gene therapy research
• Funding support partner for the Gwendolyn Strong Foundation “Project Mariposa”
• Purchasing 35+ pieces of adaptive equipment for the Cure SMA equipment closet
• Funding twenty Angel Arm wishes through Jacey’s Journey
• Providing medical supplies to SMA families
• Funding gift cards to SMA Medical Supply
• Partnering with Getty Owl Foundation in 2016 to provide 20 platform swings
• Funding projects to make homes and vehicles accessible for use
• Granting fluidized positioners through JHF “Snug as a Bug” program
• Granting 5 customized high-raised beds through JHF “Bed of Hope” program
• Helping fund doctor/medical specialist visits
• Providing financial support for Celebration of Life services as families say good-bye to their precious ones

We invite you to learn more about JHF at http://www.JadonsHope.org.  Make sure you keep up with foundation updates by Liking our Facebook page – Jadon’s Hope Foundation.  Please post pictures of you using your new swing to our Facebook page; our supporters love to see all of Jadon’s amazing warrior friends!  If you have any questions, please feel free to contact us directly at jadonshope@sbcglobal.net.

 

Again, congratulations on to our 2018 Summer Swingin’ program recipients! 

Not Pictured – Jericho Chadsey

Life isn’t about waiting for the storm to pass,
It’s about enjoying a good swing.

When Your Legs Get Tired, Run With Your Heart

 Amy Vrban & Kristin Burks

WRITTEN BY AMY VRBAN
Race Director – Jadon’s Hope BUG RUN

I have greatly enjoyed seeing everyone’s pictures from the Bug Run yesterday! It helps me see all I miss and see the enjoyment that was truly had at this event! I was overcome with great emotion at several moments. Moments I could talk about all day, moments I will never forget, and some so powerful no words are required.

SMA. I never knew how much those 3 little letters would impact a life. In return the impact that life would have on an entire community. Jadon. I was asked 4 times yesterday why I think Jadon has surpassed life expectancy. I don’t have the answer. Certainly not medically. What I see is a beautiful child who teaches us to love one another, encourages us to come together and help each other. To help each other beyond our own friendship and boundaries. Jadon has brought a community together to fight for all childhood diseases. He shows us how to live without giving up hope and beyond limits. To live each day and be thankful for it. Because of Jadon new friendships and bonds have been made. More and more people everyday are seeing the effects of SMA and ways they can help a devastating, terminal disease, come to an end. Jadon’s hope. His parent’s hope. His family’s hope. My hope. Friend’s hope, our committee’s hope, the community’s hope, hope across the country, hope around the world. It’s spreading and everyone can help!

Jadon’s parents have an endless love and passion for their children which has spread into the Foundation. Inspiring and infectious. Their kindness, love, passion, and dedication will touch your heart and soul.

I am thankful for every single person who registered and gave their money to such a wonderful cause! I am thankful for the silent donations and those who continually want to give! Thank you to all our sponsors who are new and have given to the Bug Run for the 3rd year! We couldn’t do it without you! It’s overwhelming to say the least. People helping other people!

Spreading HOPE and awareness! I am blessed to have a wonderful committee who share the same passion! They are an amazing group of people who work so hard in different areas and in different ways but they all give all they have.

Every single volunteer! Over 150 volunteers came out to help and gave their time to help make this, a fun, safe, and enjoyable event. Thank you!

Pictures from the event will be posted in the next couple of days and I’ll keep you posted on that!

We look forward to the 4th annual Bug Run in 2016! Fun things are already being planned!

Look for us in the Old’s Settler’s Day parade in September! We’ll have the Bug Run date set! Please visit http://jadonshope.org to keep up with the latest news and happenings with Jadon and the Foundation!

In the mean time keep hope alive, keep fighting and running!
And remember; when your legs get tired, run with your heart!