The 7th Annual BUG RUN was held on March 30th, 2019. The temperature at race time was 34 degrees and it was snowing (But it was better than rain).
Each and every year we are blown away by the amount of support we have for the BUG RUN. It truly warms our hearts to see people jumping on board to support our SMA community and our little hero, Jadon “The BUG” Burks. However, this year’s race was nearly the race that wasn’t. With a winter storm in the forecast (IT”S SPRING!!! Buuuuuuut) the city needed to make a decision on our race.
Within the window of uncertainty we couldn’t help but think of all the hard work that went into a day that potentially wouldn’t happen. We couldn’t help but think of those who were planning to run their first race, and those who would “run for” an individual with SMA. We couldn’t help but think of all the many volunteers that set that day aside to help spread SMA awareness. The hardest part was considering the fact that our committee had worked ALL YEAR for a race that might not happen. Planning for the BUG RUN starts nearly a year in advance. (We have already had a meeting for next year’s race.)
Our committee is completely incredible. Our “Amazing Race Director” (That’s now her official title) Amy Vrban keeps us all organized and everyone does their part with such dedication and enthusiasm. We are truly humbled.
We want to give a big THANK YOU to our incredible committee
It was futile to think we could control the weather, but we could pray, and that’s what we did. The forecast began to change and the 90% chance of possibly 3” of snow became a 5% chance of a trace of snow.
THE RACE WAS ON!
IT WAS COLD!
IT WAS REALLY REALLY COLD!
Did we mention that it was COLD?
BUT IT WAS DRY.
The week leading up to the race was possibly more stressful than other years, but possibly it was even more rewarding. We were relieved to simply have the event.
Despite the cold, the racers showed up to race.
DJ Ty was there to spin some tunes and help us keep things moving.
The kids showed up to sing the national anthem.
The city was there to keep us safe and we had ourselves a BUG RUN.
We hope the 6th annual BUG RUN will be the coldest we ever have and we hope it never rains but the only forecast we can be sure of is this: If there is a BUG RUN, there is good in the world.
THANK YOU ALL SO MUCH.
SEE YOU NEXT YEAR AT THE 7TH ANNUAL BUG RUN!
Today you are FOUR YEARS OLD. At times it is truly hard to comprehend. Some days we wonder where the 4 years have gone and other times we look into your eyes and you seem infinitely older than just 4 years. We have truly taken one day at a time and ended up right here…4 years later.
Like it was yesterday, we remember the day you were born. We remember the pride we felt, the dreams we had for you, and the love that consumed us in your presence. Although our dreams for you have changed direction, our love and pride for you has grown more than we could have ever imagined.
Jadon, you have changed our lives for the better. You are our light and inspiration. You have taught us things we would have never learned any other way. You have led us places we never would have traveled. You have led us to people (amazingly good people) that we never would have met. You have taught us perspective, all those things that seemed “important” before you were born are distant to what truly matters the most. You have taught us the meaning of unconditional love and hope. Through you we have learned that life is more than what our earthly eyes see. You have changed us in ways we never would have changed. We thank God for you and these changes each day.
Our love will never change. We want you to know that our love for you is eternal and you should never worry.
Don’t worry Jadon that you can’t speak the words “I love you” as we so long to hear…we can see it in your eyes
Don’t worry Jadon that your smile has gone…we can still see that little twitch in the corner of your mouth and that sparkle in your eye.
Don’t worry Jadon that you can’t speak the words “GET my crazy sister off of me before she tears my eyes out and rips off my ear”…we can see it in your scrunched up eyebrows.
Bug, we have done A LOT of coughs, a ton of suctioning, a whole lot of thumping, quite a bit of stretching and much more worrying than any family should – we have also felt and experienced more love than some families feel. Your gentle attitude and desire to see tomorrow has calmed us and inspired us.
While, The SMA Standard of Care booklet doesn’t ACTUALLY state that we MUST tell you we love you 97 times per day or that we MUST give you 214 kisses per day…. IT REALLY SHOULD. And here’s the deal … that is not going to change.
Happy Birthday fella, we love you so incredibly much,
Mommy, Daddy, and Sissy