Two years ago I built wooden ramps for our sidewalk which has a single step at the bottom and a single step at the top. With only one step to conquer at a time one would think we could use the “Stroller Wheelie Move”. You know the move, it’s where you pop a wheelie with the stroller, place the front wheels on the step, lift the back and push the stroller forward onto the step. Easy cheesy but not very pleasy when the “stroller” weighs over 90lbs fully loaded with equipment. Once you throw in a 30+ pound super hero the wheelies are pretty much out of the question.
Once I finished the ramps it occurred to me that what I had built was very temporary. I used plywood which would not withstand the weather for more than a couple of years and these ramps would not support a power chair if we were ever to go down that path. (A power chair can weigh closer to 300 pounds or more). It occurred to me that my Hope in Jadon’s future was not even as strong as these weak ramps I had just built.
This is the part of SMA we hate the most, the temporariness. We want to plan for the future, we want to expect it, but the overwhelming statistics tell us not to even think about it. We Hope for Jadon’s future, but Hope is different than having Faith. We have Faith that Jadon’s life is in God’s hands and that God’s plan is better than what we would plan. We Hope this plan we are living includes Jadon sticking around here for a lot longer.
The ramps needed to be revised before the upcoming winter and we decided to explore the option of doing concrete. We didn’t think we could afford it but wanted to see.
The bids came in lower than I thought they might, but seemed it would likely still be too much. In a conversation with our physical therapist Jeannine she asked if there was anything we needed and Kristin jokingly said a new sidewalk. She said she would check into it and maybe someone would be willing to help with or even donate the concrete.
Jeannine spoke with several people before she spoke to Mike at Kincaid Ready Mix. She told Mike our story and asked for some concrete, he said “Sure”. Wow, just like that he said he was willing to donate concrete to make Jadon’s life a little easier. He also said he would look at our contractor list and make a recommendation. Before we could get that information to him he called back and said he had a contractor.
I met with Doug from F. Winters and Sons, a respected concrete contractor right here in Olathe and he said he would get back to us. I asked Jeannine about a bid and she informed me he was donating the labor. WOW!!
I hadn’t heard back from Doug but last Tuesday morning he knocked on the door at 6:45am. We were getting Jadon ready for school but Doug told me they were going to do our walk that morning and asked if that would work. YES, yes it would. They were completely done by 11:00 and it looked amazing.
We went to school on Wednesday to make up for the day we missed and the ride down the walk was as smooth as a basketball court. If it were not for Jadon we would not have gotten to witness this complete unselfishness. We may not have been exposed to this kind of unconditional kindness. While Kristin and I hate SMA we are humbled by WHAT and WHO God has shown us through this disease and through Jadon. These two men and these companies will never know exactly how much they have done for us and we can not thank them enough. A big thank you to miss Jeannine as well.
We don’t know if we will get a power chair because of some major obstacles (cost of the chair, we would need a different vehicle, and Jadon’s ability to drive the chair.) However, one of the obstacles has been removed, and our Hope has become stronger. We can’t yet say we have Faith in a long future but we certainly have Hope. Not wooden Hope,